Thanks For Karyn

This blog is dedicated to our dear friend Karyn. Let it serve as an online community center to help support her fight against cancer. We love you Karyn!

Saturday, May 06, 2006

NBTF Walk

The NBTF walk was a huge success and Karyn's team came in first place
for most fund raised for the foundation!! The details are still a
little foggy to me but apparently we won a paella dinner for 50
people! So we will ALL get together soon and say the saying that
Aidan always remembers Uncle Rob saying.... "I Looooooove Paella!!"

Thank you SO much to all of you that participated, that walked and
that donated. Many thanks to the T-shirt team, Susan, Abby and Thet
(with a little help from me (and Karyn's deciding vote!))---the
shirts look really great and Karyn absolutely loved them. She was
proud of all of you and you should be proud too....this is a huge
achievement. I also want to thank Thet for all the time she put in to
get us all organized, Karyn was very touched by the effort. And
getting this group to do anything organized is a feat. And of course,
to all of you fundraisers out there, you are all amazing. Jacqui,
what you did down there in LA is just amazing!

I took lots of pictures and video and will post it as soon as I can.
If any of you have some great shots you want to share (as opposed to
bad ones), please email them to me at julian@noisenoise.com and I
will add them to the slideshow.

Thanks again everyone, we are truly lucky to have friends like you.

~Julian

Friday, May 05, 2006

Friday Update

Well, so far no real new news other than the fact that they did
discover a light infection, but beyond that we don't know much more.
Since she's been on anti-biotics since Saturday, this should work
itself out soon. Other than some normal swelling, her pain seems to
be under control and she is in somewhat better spirits now that the
procedure is behind her. She wants to come home.

Discharge-wise, we have heard everything from "today" to "Monday".
Obviously we are doing everything we can to get her home as soon as
possible but we want to make sure that it is safe for her to do so.

More soon....

Wednesday, May 03, 2006

Lot's of Waiting in the Small World

After a long week of waiting, Karyn is done with the surgery and
resting back in our private room in 8 Long. The surgery lasted from
about noon to 2pm after which she spent about 2 hours in the recovery
area of the O.R. John Taylor (Dr. John Taylor that is) was working in
the OR today and was actually the anesthesiologist assigned to be the
attending for Karyn's case but declined since he is family.
Regardless, he was our mole and provided a lot of good information
while we were cut off from what was going on up there. He'll need to
get some of Alex's sold-out Zin for sure....so, um...Alex?

Perhaps the craziest part of the day was when I went to see Karyn in
recovery and found that her nurse was Lauren, a woman who lives 6
houses down from us! Then come to find that her assistant in training
was Stacey, the bartender at 19 Broadway in Fairfax who we have known
for years and who even went to birth classes with Eric and Susan. It
was a small world moment to find the woman I see walking her dog by
our house every day and the woman who has poured me a few Jack and
Cokes in my day both gathered around Karyn and gingerly caring for
her as she was escaping the effects of the surgery.

After about two hours in recovery I wandered into the halls of the OR
and ran into Dr. Parsa. Finally! A chance to speak to the man
himself. He now refers to me as "buddy" which I like because it
always comforts me when a person with his seniority and unbelievable
skill tip their cards and lets me know they're just a human too,
albeit a very smart one. He said the surgery went very well and that
he did not find much in the way of visible infection, though a
culture would need to be grown to verify that. Regardless, he said he
wanted to be safe and that he was going to try to get Karyn home "by
the weekend". Feel free to define what that means. We like Dr. Parsa,
he's been really comforting to Karyn and to us and we feel lucky to
be in his care.

One other meeting that happened today while Karyn was in surgery was
with her Neuro Oncologist, Dr. Susan Chang. While it would be too
much information to write out, we did see the two MRIs, the post-
operative and the one from Monday the 1st. The resection cavity (hole
where the tumor was) was huge in the first one but had nearly
vanished in the MRI from Monday. There are still some unknowns
pending consultation with the pathologists in tomorrows Tumor Board
at noon, but mostly to discuss the impact the infection (if there is
one) would have. There are some questions as to how effective the
Radiation and Temodar were but it appears that they actually *were*
helpful. There has been no real discernible growth in the tumor since
the surgery so we are confident that we are in a good position to
resume the fight. To this end we don't yet know what the chosen chemo
or drug therapy will be, but I did mention to her that we would be
consulting with nutritionist Jeanne Wallace as well as Michael
Broffman at the Pine Street Clinic. She was very open to this and
said that these are all complimentary and should be pursued.

So here we are, 10:05PM at UCSF. Karyn is sleeping soundly now and I
am going to head home to bed.... hopefully the Tivo got Lost
tonight.....

Once again, a HUGE thank you everyone for being so concerned about us
and for following Karyn's progress. We definitely feel all of your
various presences and are eternally grateful for all the support we
have gotten and continue to get from all of you.

~Julian

Surgery Is Complete!

Karyn is in recovery now and reportedly doing well. On my way up now...

Going In (for real this time

)Karyn just got wheeled into surgery...should be about 2 hours.

Going In

Karyn is in the ready room now andis going in any time.

In Line

Back on food (and sadly, coffee) restriction and we are told surgery should be around noon. Will believe it when I see it.

Tuesday, May 02, 2006

Bumped

Surgery has officially been bumped to tomorrow...more waiting. But for now we are eating everything in sight!

Still Waiting...

26 hours without food and they still won't tell us if the surgery is on for tonight. Still waiting here...

The Waiting

Currently awaiting word from the O.R. on when the surgery might happen. We are hoping to know more soon and will update

More Surgery

There has been another setback in our seemingly never-ending quest to get our dear Karyn back home. In case some of you did not know, we ended up spending the day in the ER on saturday while we waited (and waited) for information about some seepage that began coming from the incision. After about 7 hours of waiting she was admitted into UC and has been receiving an IV of antibiotics ever since. This morning we found out that she had been placed on food restriction in anticipation of a procedure to relieve the excess fluid in the wound.

As it stands right now she is on the emergency schedule to get into surgery this afternoon--3pm at the soonest we have been told. Of course, nothing surprises us now and things never happen when they are supposed to. I will send updates from my phone later as news comes in.

Monday, May 01, 2006

MRI

Karyn is in the MRI right now. Docs say she will go home tomorrow. We all can't wait to have her home.

Sunday, April 30, 2006

UC

Karyn is back at UCSF for treatment of an infection in her incision. Things are going well but she will need to stay for tonight