Thanks For Karyn

This blog is dedicated to our dear friend Karyn. Let it serve as an online community center to help support her fight against cancer. We love you Karyn!

Friday, February 17, 2006

Update - A Message From Julian

Hello everyone,

I know that this blog serves as the only source of information for a
lot of you and I apologize for not being more proactive in keeping
everyone up to date. The truth is (and as you might imagine) the days
are long and tiring and there is a seemingly endless list of
important things that need to be done. In fact, I have been thinking
about writing this update for at least a week now.

Karyn is progressing well and has a daily regime of physical, speech
and occupational therapy. We have all gotten to know the staff here
and they are continually telling us how well she is doing and how
much progress she is making. That said, Karyn still has a ways to go
before she is fully recovered from the effects of the surgery and it
will be a while before her normal functionality returns. But again,
the positive signs are all there. In fact, just today I witnessed her
left leg move for the first time (though this has been going on for a
few days now...I've just missed those sessions). There is still a
great deal of swelling due to the surgery (which is quite normal) and
this puts a lot of pressure on the brain, thus restricting movement.
The good news is, with every passing day this swelling subsides and
there will be more progress. She is in a stage now where she needs to
just hang in there and get through the next 10 days or so....and she
is weathering this well. I am so proud of her strength and
determination and it shines through despite all the medication and
fatigue.

As of now, the target release date for Karyn is February 27th, though
this is pending approval by the senior staff here. We had a home
evaluation on Monday where we, accompanied by Karyn and Hans (the
head physical therapist) visited our house to see what interim steps
needed to be taken. We were all pleasantly surprised to find that all
we needed to do was to add extra railings where there currently are
none. I know that once she gets home her spirits will be greatly
improved as she will be able to be with the children all the time,
something she dearly misses. We have been able to bring the kids by
for visits, but as you may imagine, hospitals are no place for
children....they are no place for adults either, and I am counting
the days to not having to come here any more. For now she is where
she needs to be though, and I am grateful for all the assistance we
get here.

One other reason I wanted to write this message was to simply say
thank you for all the help our friends and family have given us
during this ordeal. Between the food deliveries, the help with the
kids, the spreading of various loads, the financial contributions and
positive messages, we are simply left in awe of you all and truly
thank you from the bottom of our hearts. You never expect something
like this to happen to you... because these things only happen to
other people. All I can say is, we will be forever grateful to all of
you for helping us during this time of need.

Please keep the cards, emails and blog messages coming. Karyn gets
them all and every word makes her feel better. When she gets into her
radiation treatments, I lean down and whisper to her that I will be
right outside the door waiting, and to remember that there are many
many people thinking of her in that very moment. People all over the
world with hearts bigger than I could have ever imagined. People that
will help her gain the strength to beat this.

So as we head into another weekend, remember to appreciate all that
you have. Enjoy every moment you can. Don't let a single life moment
pass you by. Smell those flowers deeply. Tell that person how much
you love them. Then tell them again and again. It is these things
that make us human and it is these things that define our life
experience. Every single moment is a gift, so accept that gift every
time it comes your way, no matter what form it might take today.

Until next time.....

~Julian

Tuesday, February 14, 2006

Happy St. Valentine's Day

Happy St. Valentine's Day!

You all have a special place in my heart today and I am sending you
kisses and hugs from Kentfield Rehab.

I am touched by all of your sweet messages, toasts and chocolate
indulgences. Today, with the help of my physical therapist, I was
able to move my left leg, which was very exciting and "promising" as
the doctor put it.

I have started a radiation regime that will last the next 6 weeks
(today was the first treatment). Each treatment only lasts a minute
or two and they are targeting the remaining cancer cells that they
could not take out during surgery. So, every day around 3:15PM I am
saying a mantra to rid my brain of the residual cancer...as I told
Jacqui this weekend, I do strongly believe in the power of prayer and
positive thinking and I am grateful for all of you that are including
me in yours.

My doctor told me that if my progress continues as it is now, they
have targeted February 28th to send me home. Thanks to some dear
friends, we will be able to make the necessary modifications to the
house that will allow me to live there without much assistance as I
slowly regain the use of my left side.

Kisses, Besos and Baci from the bottom of my heart!

Love,

Karyn

Champagne, dark chocolate, and strawberry wishes

Get well videoclick image to download video
Click here for some still photos

Monday, February 13, 2006

Group Prayer for Karyn

Hi to Karyn's community,

As I'm sure many of you have done as well, I've asked the friends of my community to join Karyn's community and help her recover. Though many of my friends have never met Karyn directly, they know of her through me and are anxious to contribute in whatever way the can.

In connection with this, a couple of my friends have said to me something to the effect of: "I'm not really a religious person and I don't really pray; what would you like me to do?"

Obviously this is a very personal matter and far be it for me to tell anyone how to pray. But when asked for guidance, I took the liberty to make the following suggestion:

Create a mantra for Karyn, something simple, and repeat it as many times a day possible; use those idle moments when stuck in traffic or waiting for the bus or drifting off to sleep. The more you repeat it, the more it will become second nature and you¹ll find that you'll be saying it under thoughts or during conversation and you won¹t even really notice it (think Franny and Zooey).

This is part of my own practice. I don't usually share my mantras but for this purpose I have no issue. My mantra is: "Karyn is healed, Karyn is healthy, Karyn is recovered, Karyn is thriving." I repeat this over and over and over. I set times of the day where I practice my mantra, a few minutes here, a few minutes there, it all adds up. Particularly when I feel helpless, or I get sad or I get anxious, I just start repeating this mantra and it really helps me get back on track; the positive track; the one we all need to stay on for Karyn's recovery. I even went so far as to assign this task to my siblings (I take this license with my immediate family!) and I've asked my sisters and brothers to commit to saying this for 3 minutes a day. Just commit to three minutes, before you know it it'll be 5 minutes, then 6 and so forth; it really adds up.

Again, I hope I haven't offended anyone. Please don't regard me as presumptuous; as I say, everyone has their own style and way. But if you encounter anyone who wants to help but would like some direction, I just thought I'd share my experience. I've found this to work in the past for me through a number of difficult times.

Peace and love to you all.
Lisa, proud member of Karyn's ever-growing community

*A suggestion from Jacqui: Let's take it a step further and have everyone chant a mantra at the same time everyday. I'd like to have everyone do this at the time of her radiation treatments, is it 3:00 everyday Julian? I know people won't be able to do this everyday right on time, but if you can remember a few times a week at 3:00 this can be very powerful for Karyn. Just shut the door to your office, go sit in your car or just go sit in the restroom for 5 minutes and visualize Karyn healthy, glowing, happy.

One of the first things Karyn said to me tonight is that she believes very strongly in the power of prayer and she is so grateful that so many people are praying for her and sending her such positive energy. She loved this idea of a group prayer for her during her treatments.